Russell wrote:Well It has finally hit home that my wife just can't work anymore. We are going to be pretty much financially devastated after she quits her job. Going to be a struggle to even keep our house and pay bills, not sure what we are going to do until we slog through all the red tape involved with applying for disability.
Maybe you could PM JBrazen...I'm sure he'd love to help provide for your healthcare needs out-of-pocket...
Both you and your wife should be ashamed of yourselves for not having better paying jobs and for not having saved more money and being better prepared to deal with your own healthcare issues. Shame shame shame on you!!!!!!!!!!!!!!!! And shame on you for being such a burden on society!!!!
JawZ wrote:Maybe you could PM JBrazen...I'm sure he'd love to help provide for your healthcare needs out-of-pocket...
Both you and your wife should be ashamed of yourselves for not having better paying jobs and for not having saved more money and being better prepared to deal with your own healthcare issues. Shame shame shame on you!!!!!!!!!!!!!!!! And shame on you for being such a burden on society!!!!
I hope that you aren't being serious. If so, you're being a jackass.
Rus...you're fine bro. I was making a point at how insensitive people can be especially towards other members when they fail to empathize with another members situation. I wish I was rich and could help you out...I truly do.
RoundEye wrote:I just HAVE to tell the world about this update:
Weebles wobble but they don’t fall down
My dad is very political, I’m not. Well……… I’m holding in my hands a letter from the US senate concerning my health issues. Not just some form, thank you note, but a letter addressed to me from the friggin United States Senate. There’s a lot more to the letter but that is the jist of it. Ironically a Medicaid card came in too, now I can pay for my meds. Remember, I was looking at a $3200 a month bill for just one medication. I haven’t even started that med yet, and I’m not looking forward to poking myself in the stomach every day either.
I’m not certain whose bells my dad rang, but he been raised to a god-like superhero status in my book. If the good die young, my bad ass will live forever.
Are you saying that all you needed to cover your expenses was a medicare card that was late in arriving?
By the way, I have family and a friend with MS. There are several different types. Some go into remission, some types symptoms can be contained with the right drug treatments but you have to experiment to find which is the best for you.
I'm so sorry that you have to struggle with this, but I'm very encouraged by the progress being made today on treating MS. My prayers are with you. And your Dad sounds like a stand-up man!
My wife's doctor just changed her over from Avonex to Rebif. Looking at a $500 co-pay every month. We are working with MS Lifelines in hopes of them finding a program like she had with Avonex. She only paid $10 a month for that. She also was sent to UAB in Birmingham in April to meet with a specialist there. He prescribed a new medicine, Ampyra, that just came out in March. It is supposed to improve walking in 1 out of 3 patients. She started it on Friday, praying that it helps her.
Russell wrote:My wife's doctor just changed her over from Avonex to Rebif. Looking at a $500 co-pay every month. We are working with MS Lifelines in hopes of them finding a program like she had with Avonex. She only paid $10 a month for that. She also was sent to UAB in Birmingham in April to meet with a specialist there. He prescribed a new medicine, Ampyra, that just came out in March. It is supposed to improve walking in 1 out of 3 patients. She started it on Friday, praying that it helps her.
Russell wrote:My wife's doctor just changed her over from Avonex to Rebif. Looking at a $500 co-pay every month. We are working with MS Lifelines in hopes of them finding a program like she had with Avonex. She only paid $10 a month for that. She also was sent to UAB in Birmingham in April to meet with a specialist there. He prescribed a new medicine, Ampyra, that just came out in March. It is supposed to improve walking in 1 out of 3 patients. She started it on Friday, praying that it helps her.
Hope they help you russell. They took my $150 copay down to $50 a month.
Rebif has helped my wife quite a bit, seems to have more good days than bad now. She has problems with vision, speech, and exhaustion mostly.
Send a PM if you ever want to talk.....
My son ... ask for thyself another internet connection, for that which I leave is too slow for thee
I'm back, for how long I don't know.Something is really screwy with my net connection. It pops in and out at random.
Thanks everyone for the well wishes. I'll say it again, it has been a mind-twisting bitch of experiece, to say the least. Since this thread started my life has flipped upside-down and backwards. It has impacted my walking, speech and cognative skills quite a bit. I'm not much away from stumblig, blithering, idiot now. At least now I have a viable excuse for not being right in the head.
Russell I'm on the Rebif. That stuff is $2650.00 a month. How's the average person supposed to afford that?!?! I have lesions on my brain, brain stem and spinal colum, numbering in the 1000's. The doctors are still trying to figure out how I'm able to walk and talk at all. Even if it is with a slur and the assistance of a walker.I refuse to go down without a long, hard battle.
Sliding down the banister of life ..........................
RoundEye wrote:I'm back, for how long I don't know.Something is really screwy with my net connection. It pops in and out at random.
Thanks everyone for the well wishes. I'll say it again, it has been a mind-twisting bitch of experiece, to say the least. Since this thread started my life has flipped upside-down and backwards. It has impacted my walking, speech and cognative skills quite a bit. I'm not much away from stumblig, blithering, idiot now. At least now I have a viable excuse for not being right in the head.
Russell I'm on the Rebif. That stuff is $2650.00 a month. How's the average person supposed to afford that?!?! I have lesions on my brain, brain stem and spinal colum, numbering in the 1000's. The doctors are still trying to figure out how I'm able to walk and talk at all. Even if it is with a slur and the assistance of a walker.I refuse to go down without a long, hard battle.
Roundeye see this program. You may well be eligible!
Through MS LifeLines Access Made Simple, you may be eligible to get Rebif at no cost, or for no more than $50 per month, for up to 1 year of treatment. Best of all, MS LifeLines takes care of all the paperwork.
Success is a lousy teacher. It seduces people into thinking they can't lose. -Bill Gates
Zilog B wrote:Hope they help you russell. They took my $150 copay down to $50 a month.
Rebif has helped my wife quite a bit, seems to have more good days than bad now. She has problems with vision, speech, and exhaustion mostly.
Send a PM if you ever want to talk.....
Glad to hear it is working well for her. Hopefully it along with the Ampyra will be beneficial for my wife too. Currently walking and exhaustion are her biggest issues. She works in a grocery store and is on her feet constantly throughout the day this includes walking up and down stairs to where the store office is located. Usually by the end of the day she is stumbling along and has to push a buggy to get to the car when she leaves. I cannot count the number of times she has come home in tears. She actually came home one day last week and had to sit down on the driveway because she couldn't walk any further. I didn't know she was even home until one of the boys walked in from school and told me I needed to go help Mommy outside. We have been considering disability, especially since her boss approached her a few weeks ago and asked her if we had ever thought about it. Unfortunately, once we commit to that we are pretty much going to be financially devastated as there is no telling how long it will take and her doctor wasn't very reassuring about her chances of being approved. Very scary situation!!!
Russell wrote:Glad to hear it is working well for her. Hopefully it along with the Ampyra will be beneficial for my wife too. Currently walking and exhaustion are her biggest issues. She works in a grocery store and is on her feet constantly throughout the day this includes walking up and down stairs to where the store office is located. Usually by the end of the day she is stumbling along and has to push a buggy to get to the car when she leaves. I cannot count the number of times she has come home in tears. She actually came home one day last week and had to sit down on the driveway because she couldn't walk any further. I didn't know she was even home until one of the boys walked in from school and told me I needed to go help Mommy outside. We have been considering disability, especially since her boss approached her a few weeks ago and asked her if we had ever thought about it. Unfortunately, once we commit to that we are pretty much going to be financially devastated as there is no telling how long it will take and her doctor wasn't very reassuring about her chances of being approved. Very scary situation!!!
Sounds like we are both in about the same situation. My wife's work is very understanding, and some days she calls in or leaves early. She's been there since they opened (about 8 years) and get sick/vacation time, which she uses when she feels to bad to work. Fortunatley she is not on her feet all day every day, but some days she is.
I would start looking into disability, even if you are not sure if you are going to use it or not. I heard it takes about 6 months to find out if you are approved or not. Supposedly a good approach to take is talk to your local MS society, they should know local occupational therapists that can evaluate someone for disablity, and they know all the steps to get SSD. That's what I read online somewhere the other day. People are able to get on without the use of a lawyer.
My son ... ask for thyself another internet connection, for that which I leave is too slow for thee
So the final word on the Rebif from MS Lifelines is we will have to pay the $500 copay up front and then file it with BC/BS for secondary consideration. So unfortunately it looks like she will be staying on Avonex for awhile.
